Event to benefit 20-month-old boy

By Eric Freeman efreeman@columbustelegram.com
Tuesday, Nov 25, 2008 - 12:31:32 pm CST

COLUMBUS -- Collin Henderson, 20 months old, the son of Dean and Nicole (Maslonka) Henderson, of Columbus, was diagnosed in September with Langerhans cell histiocytosis (LCH).

Collin has three brothers -- Devin, 6, Ben, 4, and his identical twin brother, Kyle.

LCH is a rare disease that attacks the immune system and can affect the organs, bones and blood. The disease is treated as cancer and is in the same family as leukemia and lymphoma.

A benefit to help with medical and travel expenses will be held beginning with dinner from 5-8 p.m. Saturday at the Eagles Home, 3205 12th St.

The benefit also will feature a live auction at 8:30 p.m., along with a silent auction, raffle drawing, bake sale and kids corner.

A DJ will provide music throughout the evening.

Raffle prizes include a 32-inch flat screen TV, a GPS system, a digital camera, a pearl necklace, a handcrafted sofa table, an i-Pod Shuffle and other items.

Collin Henderson was hospitalized in Omaha early in September when a surgical port was placed in his chest for use in administering chemotherapy. He has since begun a more aggressive form of chemotherapy at Children’s Hospital.

Nicole Henderson wrote in a recent e-mail that her son’s symptoms began when he was about three months old with a diaper rash, ear drainage and cradle cap that would not heal.

She said he was treated with a variety of prescriptions and 16 doctor visits over a course of 14 months.

“We had taken him to five different pediatricians,” Nicole Henderson wrote. “ The third dermatologist said this was not diaper rash or cradle cap, and that a skin biopsy was necessary.”

She said that biopsy resulted in Collin’s diagnosis.

“In Collin, the disease has compromised his immune system, making it hard for him to fight off illnesses' and infections,” she said. “It has affected his blood and liver functions; enlarged his liver and spleen, his gastrointestinal system, some digestive processes, and it has ‘eaten’ four holes in his skull. He has been through a lot, and has more to come.”

Henderson said information she has reveals that the cause of Langerhans cell histiocytosis is not entirely understood. She said researchers are studying viral infections or environmental factors that could lead to the disorder.

Donations can be made in care of the Collin Henderson Benefit Fund at Pinnacle Bank or sent to PO Box 1585, Columbus NE 68601 or to either Mindy Sindelar, 2437 33rd St., Columbus or Meri Maslonka, 824 Becton St., Columbus.

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Collins Cruisaders
Nov 25, 2008 9:58 PM
Collin's Crusaders out to help you in your time of need!!

Little dude, you have many hero's and friends behind you. Never fear your cruisaders are there for you.

Much love, a Crusader.
hang in there tough guy
Nov 25, 2008 10:50 PM
hang in there, Collin!!! We are all praying for you. You are one tough "little dude"!!!!
Jeff Toughill
Nov 26, 2008 8:17 AM
For more information about this very rare disease please visit the Histiocytosis Association of America at www.histio.org

Jeff Toughill
President
Amy
Nov 26, 2008 8:12 PM
I have personally been touched by Collin's story since Mindy shared it with me a month or so ago. Please know that my family and my children are praying for you everyday. The power of a child's prayer is great, and so please know there are many, many children who are pulling for Collin and his whole family. May God Bless all of you.
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Langerhans Cell Histiocytosis

• Langerhans Cell Histiocytosis afflicts about 1 in 200,000 people, primarily children. There are about 1,400 reported cases in the US.

• It is primarily a pediatric disease also referred to as the “orphan disease.”

• The United States government does not fund research on LCH.

• LCH attacks the immune system, organs, blood, bones and the central nervous system.

• LCH can be fatal cause life long disabilities.

• Of those who survive, 20-40 percent will be left with central nervous system disabilities, which may include learning disabilities, diabetes insipidus, problems swallowing and others.

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